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Quick survey for professionals to help shape development of the Sarcoma Assessment Measure

Posted on by BPOS

With the Sarcoma Group, Lesley Storey is in the process of developing a Patient Reported Outcome Measure. The group would like to get the view of health professionals about what they see patients identifying as important and have asked the following email to be circulated:

We are in the process of developing the Sarcoma Assessment Measure (SAM) and are currently administering a questionnaire to patients with sarcoma containing 393 items reflecting their experience, as described in interviews with 121 patients from across the UK. The Item Reduction Questionnaire (IRQ) asks patients to rate what they think is most important and what they worry most about. We will take the results of this and compare against existing quality of life measures to determine whether these capture all the issues important to patients.

The primary aim of developing SAM is to develop a tool that could be used in clinical practice to help direct patient conversations so we are therefore interested in exploring what healthcare professionals think patients think is important and they worry about.

We would like to invite you to complete the IRQ. The IRQ is split into 5 domains: physical wellbeing, emotional wellbeing, social wellbeing, financial wellbeing and sexuality. To make this less burdensome for you to complete, we have split the online version into the 5 domains. The links are below, please complete as many as you can. There is nothing in the questionnaire to identify you so your response is completely anonymous.

https://lsbu.onlinesurveys.ac.uk/sam-irq-physical-wellbeing

https://lsbu.onlinesurveys.ac.uk/sam-irq-social-wellbeing

https://lsbu.onlinesurveys.ac.uk/sam-irq-financial-wellbeing

https://lsbu.onlinesurveys.ac.uk/sam-irq-sexuality-copy

https://lsbu.onlinesurveys.ac.uk/sam-irq-emotional-wellbeing

We would like to get responses from as many people in the MDT as possible so please circulate this to your team. Thank you in advance for supporting the SAM study.

Dr Rachel Taylor (Senior Research Fellow), Professor Jeremy Whelan (Professor of Medical Oncology) and Dr Ana Martins (Sarcoma UK Research Associate)

Psycho-Oncology (Wiley): Introducing Registered Reports

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What are Registered Reports?

Registered Reports are a new form of empirical article in which the methods and proposed analyses are preregistered and reviewed prior to research being conducted. The cornerstone of the Registered Reports format is that a significant part of the manuscript will be assessed prior to data collection, with the highest quality submissions accepted in advance. This format is designed to minimize bias in deductive science, while also allowing complete flexibility to conduct exploratory (unregistered) analyses and report serendipitous findings Psycho-Oncology is pleased to announce that the journal now accepts Registered Reports. Find out more.

Trainees for NCRI Clinical Studies Groups and SPED Advisory Group: Psychosocial Oncology and Survivorship Clinical Studies Group vacancy.

Posted on by BPOS

The NCRI Clinical Studies Groups (CSGs) and Advisory Group Trainee scheme provides the opportunity for junior researchers to experience the workings of a CSG or Advisory Group. Trainees are appointed for two years in the first instance with an option to join a CSG subgroup thereafter, depending on vacancies. The Psychosocial Oncology and Survivorship Clinical Studies Group has a vacancy.

» Role profile and advert (PDF)

» Application form (internal webpage)

Please note, the application process for the NCRI Children’s Cancer & Leukaemia and Head & Neck CSGs trainee scheme is separate from the above. An advert for these two CSGs will open in mid-summer 2018.

The application deadline is 5pm, 2 July 2018

Save the date! Next BPOS conference

Posted on by BPOS

Abstract submission ends 19th November for our conference being held on 28th February – 1st March 2019 at Double Tree Hilton Hotel, Chester

Theme: Innovations in Psychosocial Oncology: Research, Education & Practice

The conference will be hosted locally by Professor Nick Hulbert-Williams and colleagues from Chester Research Unit for the Psychology of Health (CRUPH), University Chester

Registration is open!

To remind yourself of this year’s conference in March, you can download a pdf file  of the programme. Or see how the conference unfolded through our BPOS storify.

GPDR compliance

Posted on by BPOS

The General Data Protection Regulation (GDPR) takes effect from 25 May 2018. The GDPR is a standardized user data protection framework which operates across Europe and imposes obligations on organizations, like BPOS, that handle the personal data of people in the European Economic Area.

This page briefly explains what BPOS is doing to work towards GDPR compliance.

First, we are improving our transparency by developing our Privacy Policy to identify the information that we collect about our users, how we use that information and keep it safe. If you continue to be a member of BPOS after we introduce these updates, it means you agree to this new policy.

Second, we recognize that it’s important for you to control your information so we are considering how to develop features that will help you to easily manage and access some of your information held by BPOS. We will provide more information on these features as they become available.

Third, since we use some third-party suppliers to make our website available, we are reviewing these contracts with a view to ensuring that they comply with applicable laws, including GDPR. Where amendments to these agreements are required we will enter into Data Processing Agreements with our suppliers.

Fourth, we recognize that we have a responsibility to protect your data so we are improving our internal controls around committee access to data.

None of these steps are likely to impact your BPOS membership day to day.

For support on anything related to GDPR, including how to access, inspect, update and remove your personal information with respect to BPOS, please email us at secretary@bpos.org.

STOP PRESS ****Palliative care rep needed – apply by Friday 25th May

Posted on by BPOS

We are looking for an enthusiastic and committed individual to fill the following 3 years post on the BPOS Executive Committee:

  • Palliative care representative

If you are interested, or would like further information please contact Eila Watson (BPOS Chair) for an informal discussion (ewatson@brookes.ac.uk). To learn more about BPOS please take a look at our website http://www.bpos.org/

Applicants are asked to submit a covering letter detailing why they would like to join the committee, along with a short CV, to Sarah Dickinson (s.dickinson@leeds.ac.uk).

The deadline for applications is Friday 25th May at 5pm.  The Executive Committee will decide on appointments.

The Evolve Project

Posted on by BPOS

This is an exciting opportunity to be a member of a multidisciplinary team involved in a project to develop a model for meaningful patient engagement in the design and development of Urological Cancer care across Europe. This project will focus on one aspect of delivering evidence-based care, clinical practice guidelines (CPGs). This is an excellent opportunity for career development in a research unit with an international reputation in health services research as applied to urology. As part of the AUU team you will be required under supervision to systematically review existing models of patient engagement in CPGs and quality assess existing models of patient engagement in CPGs; to liaise with key stakeholder groups and, where appropriate, attend EAU guideline panel meetings and to manage the co-design process. This may include the design of, recruitment to, management and analysis of the results of an online Delphi Survey or large survey, stakeholder interviews and focus groups.

https://www.abdnjobs.co.uk/vacancy/research-fellow–345315.html

For all informal enquiries, please contact Dr Sara Jane MacLennan (s.maclennan@abdn.ac.uk)

The Macmillan Research Grants Scheme 2018 is now open

Posted on by BPOS

Macmillan invites proposals for research with clear potential to benefit people living with cancer through contribution to the outcomes laid out in the Macmillan Research Impact Framework.

Outline applications are invited in the following areas:

1. The impact of new developments in cancer treatment (such as immunotherapy, personalised medicine, modern radiotherapy techniques) on the lives of people with cancer;

2. How to most effectively get information about their diagnosis and prognosis to people living with cancer to enable them to make the right decisions about their life, treatment and care;

3. Identifying, understanding and addressing inequalities in experience and outcomes following a cancer diagnosis.

To find out more, and apply, please visit: www.macmillan.org.uk/researchgrants

Macmillan invites proposals for research with clear potential to benefit people living with cancer through contribution to the outcomes laid out in the Macmillan Research Impact Framework.

 

Last chance to join the BPOS executive, and make a difference and boost your cv!

Posted on by BPOS

We are looking for enthusiastic and committed individuals to fill the following 3 years posts on the BPOS Executive Committee:

  • Palliative care representative
  • Psychiatry rep representative

If you are interested in any of these vacancies, or would like further information please contact Eila Watson (BPOS Chair) for an informal discussion (ewatson@brookes.ac.uk). To learn more about BPOS please take a look at our website http://www.bpos.org/

Applicants are asked to submit a covering letter detailing why they would like to join the committee, along with a short CV, to Sarah Dickinson (s.dickinson@leeds.ac.uk).

The deadline for applications is Wednesday 25th April at 5pm.  The Executive Committee will decide on appointments.

Conference prizewinners

Posted on by BPOS

We will be producing a Storify of our recent conference. In the meantime we wish to congratulate the prize-winners at the conference:

Best Tweeter: @RacheltheResearcher

Best Student Poster: Eden Robertson

Best poster: Stephen Stowcroft

Best oral presentation: Carol Rivas

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