Psycho-Oncology (published by Wiley) is the affiliated journal for BPOS and IPOS. Previously BPOS members were able to select if they wanted journal access and paid an additional fee (at a reduced rate) that we passed on to Wiley. BPOS has recently signed a 3 year contract with Wiley which entails the Society paying a yearly fee entitling all BPOS members to free electronic access to Psycho-Oncology.
Those of you who came to the conference last year may recall Eden Robertson who won a student prize. She has recently launched her Delta animation officially – the first publicly available component of Delta, a world-first resource that supports both parents and young people who are deciding whether to enrol in a childhood cancer clinical trial. Read More “Eden Robertson launches her animation”
The British Psychological Society Faculty for Oncology and Palliative Care (SIGOPAC) has worked with the Anthony Nolan Trust and contributed to a post-stem cell transplant (SCT) care pathway, with psychological care embedded throughout. They are now seeking opinion on this pathway via an online survey (https://www.anthonynolan.org/8-ways-you-could-save-life/campaign-us/our-work-improve-post-transplant-care ). There are separate surveys for patients/carers/families affected by SCT and one for NHS representatives with experience of SCT.
If you are able to contribute please use the link above and also feel free to forward this to any of your colleagues that may be able to contribute.
With the Sarcoma Group, Lesley Storey is in the process of developing a Patient Reported Outcome Measure. The group would like to get the view of health professionals about what they see patients identifying as important and have asked the following email to be circulated:
We are in the process of developing the Sarcoma Assessment Measure (SAM) and are currently administering a questionnaire to patients with sarcoma containing 393 items reflecting their experience, as described in interviews with 121 patients from across the UK. The Item Reduction Questionnaire (IRQ) asks patients to rate what they think is most important and what they worry most about. We will take the results of this and compare against existing quality of life measures to determine whether these capture all the issues important to patients.
The primary aim of developing SAM is to develop a tool that could be used in clinical practice to help direct patient conversations so we are therefore interested in exploring what healthcare professionals think patients think is important and they worry about.
We would like to invite you to complete the IRQ. The IRQ is split into 5 domains: physical wellbeing, emotional wellbeing, social wellbeing, financial wellbeing and sexuality. To make this less burdensome for you to complete, we have split the online version into the 5 domains. The links are below, please complete as many as you can. There is nothing in the questionnaire to identify you so your response is completely anonymous.